Adding Your Network
- How will my CRN benefit by participating in this project?
- How can I find out if my CRN qualifies as a network and if it is already in the inventory?
- How will my CRN be contacted?
- What is a "Network Profile"?
- If I provide my CRN name and address, what information will become public and what information will remain confidential?
- What is the "Inventory"?
- What is the source of the data for the Inventory?
- Does the Inventory information relate to ClinicalTrials.gov?
- How can I update my CRN's profile with new information?
How will my CRN benefit by participating in this project?
CRNs are important for advancing clinical, behavioral, and epidemiological research and for building future research capacity. This information will be helpful to further the NIH Roadmap goals, as it provides descriptive information on CRNs that can be utilized to increase the productivity and efficiency of clinical research and to expedite translation of basic research findings into treatments. In addition, publicly available information about your CRN may be useful to others interested in your research efforts.
How can I find out if my CRN qualifies as a network and if it is already in the inventory?
To determine if your network is already included in the inventory please go the Home Page and either Search or Browse for your network. If it is not included and you want to find out if your network satisfies the project's definition of a CRN, please visit the Add Your Network page to view the Criteria for Networks for Clinical Research. If you believe your network meets the eligibility criteria please complete and submit the Core Survey. You may contact us at Help@ClinicalResearchNetworks.org or 1-877-885-1122 to request a copy of the Core Survey or you may download the survey on the Add Your Network page.
How can my CRN be added to the inventory?
Networks that satisfy the project definition of a clinical research network (see "What is a clinical research network (CRN)?"), that are not already included in the inventory, should complete the Core Survey on the Add Your Network page. Once the Core survey is submitted, the network manager will review the survey for completeness, and will contact you regarding eligibility within 1 week of receipt. If your network is eligible to be part of the inventory, the network manager will seek your approval to have your network profile posted on the website.
What is a "Network Profile"?
A Network Profile is a summary of the information that a network provides in response to the data collection survey. The topics included are: year network established, funding sources, geographic location, types of studies, conditions studied, and target population. Most networks also include their web site and contact information.
If I provide my CRN name and address, what information will become public and what information will remain confidential?
CRNs will be asked for consent to have information about their CRN posted on this web site. CRNs will be able to review the information prior to it appearing on the web site. Networks can also update information using the "Request Update" function on the profile.
What is the "Inventory"?
The term "Inventory" is used to refer to the searchable database of clinical research networks - close to 300 networks in total. The inventory may be searched by browsing the list of networks, searching on key words, and searching the data on multiple variables.
What is the source of the data for the Inventory?
The Inventory is based on the information that each participating clinical research network has provided in the Core survey and agreed to have displayed online.
Does the Inventory information relate to ClinicalTrials.gov?
If the clinical research network reported that they conduct clinical trials, a link to the web site for ClinicalTrials.gov appears on its profile next to the its results for Types of Studies. When you click the link to ClinicalTrials.gov you enter the ClinicalTrials.gov site and see a list of studies conducted by that network.
How can I update my CRN's profile with new information?
Updated information can be submitted using the "Provide Update" button in the Profile. This selection shows the current information for each item and provides space to update the profile. After completing the update, you can select "Request Update" and the changes will be sent to the web site manager for updating the data base. Changes will usually be available in 48 hours from the receipt of the update. Networks are also contacted annually to review and update their profile information.
